What’s it all about then?
[5 Mar 2009 | No Comment | ]

This site is for anyone concerned with cancer of unknown primary (CUP) and rare cancers.

The site is starting with the experience of one person and his family and friends but it is hoped that it will evolve to have a much wider relevance and scope over time.

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Rare Cancers »

[25 Jun 2012 | No Comment | ]

Hepatoblastoma is a cancer of the liver, caused by defective foetal cells, which usually occurs in young children up to the age of two years. It is extremely rare, affecting approximately 1 in every 100,000 babies and toddlers in the UK each year, with the incidence in the US being nearer to 1 in a million. There are generally no significant genetic or environmental factors that can cause this disease.
The SIOPEL organisation, who lead studies into improving the prognosis and quality of life for children affected by liver tumours, provide …

Treatments »

[29 Mar 2009 | One Comment | ]
Testicular Cancer

This is a placeholder for Testicular Cancer.
The discovery and use of Platinum based chemotherapy as part of a combination of drugs has transformed Testicular Cancer into a major success story over the last 30 years. It has gone from a sub 10% success rate to well above 90%. So why doesn’t this work with other cancers?
Image is of Mr. Testicle

Useful Info »

[29 Mar 2009 | No Comment | ]
Which way next?

This is a holding place to keep track of proposed articles that might prove useful to people interested in CUP and rare cancers. Proposed articles include “Access to Medical Records”, “NICE and the proposed guidelines”, “Chemo – sucess for Testicular Cancer not repeated elsewhere”, “MicroRNA” analysis and potential benefits to CUP”.
Feel free to add suggestions as to other usefult ideas or possible links.

Rare Cancers »

[25 Mar 2009 | One Comment | ]
Composite Extrarenal Rhabdoid Tumours

Not the most catchy of titles. The only reason for including this one at the moment is that it was an added complication to Matt’s particular cancer. The image is of ‘ordinary’ epithelial cells. [1]
Matt’s first pathology result included the following: –
“Microscopic Report
Viable tumour cells are seen which in places form pseudo-rosettes around vessels and are characterised by an anaplastic rhabdoid morphology with abundant refractile intracytoplasmic globules. Many of the cells show multinucleation and many also show very prominent amphophillic nucleoli. Small numbers of mature lymphocytes are scattered throughout the …

Useful Info »

[18 Mar 2009 | No Comment | ]
Finding Information

What did people do before the internet and search engines arrived?
I’m guessing that for the most part the consultant’s words were the ‘be all and end all’ of finding information. Digging around in medical libraries would have been time consuming and frustating without prior experience in this area. Digging around in a general library would have offered very little. Now, however, the first step for many after the visit to the consultant, will be to open Google and see what the web has to say about a particular cancer or treatment regime.