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What’s it all about then?

5 March 2009 11,046 views No Comment

Matt Regents ParkThis site is for anyone concerned with cancer of unknown primary (CUP) and rare cancers. It tries to look at the special problems faced by sufferers of these cancers and their family and friends.

The site is starting with the experience of one person and his family and friends but it is hoped that it will evolve to have a much wider relevance and scope over time.

When you are dealing with something as serious and as potentially fatal as cancer, you want to be sure that everything possible is being done and being done in a timely fashion.

The delays and uncertainties that arise when the experts are in the dark because it can’t be determined where the cancer started or the cancer is too rare to have much information, can sometimes lead to a lack of trust in the treatment being offered and anxieties about missed opportunities.

Ideally you will want to find someone with very similar problems who has received the right treatment to achieve complete remission and ultimately to be regarded as cured. However many of these people will be keen to get on with their lives after the scary period of living with cancer and who could blame them?

Those of us who supported someone for who we cared deeply and someone who ultimately lost their lives to cancer can still provide useful information and support. You may also benefit from knowing what we might now have done differently if we had sufficient knowledge from the start.

Matt and his family and friends were inspired by those personal websites that were willing to share some of the highs and lows experienced along the way as well as detailed information about the treatements and care given. Now when we think of Matt we want to give something back and we have been aided considerably by generous donations from the company he worked for.

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